I know it’s been awhile since I’ve posted but between my health and just life in general, I haven’t really had much to say that hasn’t already been said. But now I do have some updates:
– the neuromuscular problems we’ve been chasing since 2015 have recurred. I’m back to having pain, numbness, and weakness in my legs and arms. As they’ve been before, my reflexes are also not normal. I saw my new neurologist today and he wants to redo my workup. So to start, I’ll be having an MRI of my brain, cervical spine, and thoracic spine. I’ll also be having an electromyogram and nerve conduction study. Based on the results of those will decide what the next steps are (like a lumbar puncture).
-my Trigeminal Neuralgia has been progressing. I’m now dealing with a burning pain and a pins and needles/electric buzzing feeling. Right now we’re going to continue to treat with medicine but in the future, I will be seeing a functional neurosurgeon to discuss my surgical options.
– I’m seeing a new POTS doctor at the end of the month. Hopefully he’ll have some answers to improve my quality of life.