Category Archives: Uncategorized

One of the most anxiety producing things when you live with a progressive condition (like Trigeminal Neuralgia) is the fact that it will inevitably progress. You’re always wondering how and when. Well for me, that time has come. Since about may of this year, my pain has become more intense and harder to control. ForContinue reading “What It’s Like When Your Condition Progresses”

Today is Rare Disease Day so I was to talk about the disease/condition that affects my life the most: Trigeminal Neuralgia. The first picture pretty much sums up what I feel with it. I have both types of Trigeminal Neuralgia pain. The Type 1 (shocking) pain) luckily isn’t as frequent as it used to beContinue reading “Rare Disease Day”

Hi everyone! I think it’s long past time for an update. Life has been pretty busy for me lately. I’m almost done with my first term back in college and it’s going well! I’m very much enjoying being back and having something to occupy my brain. I definitely needed it. I’m already registered for summerContinue reading “I think its time for an update….”

I know every update I say it, but my new year’s resolution is to post here more regularly! With that said, I have several updates to share! I am going back to school again! I’m going to be getting my Bachelor’s in Social Work. After finishing my paralegal certificate, I decided to finish my bachelorsContinue reading “Updates/New Year’s Resolution”

Hey Everyone, I know it’s been awhile since I last posted. A lot has been going on. But I thought I’d jump on here and give y’all a little update! The Trigeminal Neuralgia has still been really hard to deal with. I’ve been in a flare and in pain more than I haven’t. Unfortunately thatContinue reading “It’s Been Awhile”

With the protests going on during the COVID-19 pandemic, I thought I would share the following images with tips on protesting safely during a pandemic.

I know it’s been awhile since I’ve posted but between my health and just life in general, I haven’t really had much to say that hasn’t already been said. But now I do have some updates: – the neuromuscular problems we’ve been chasing since 2015 have recurred. I’m back to having pain, numbness, and weaknessContinue reading “Life Update”

With everything going on with the coronavirus/COVID-19, I thought I would share some reputable resources of information. Unfortunately there’s a lot of misinformation being spread. The best way to prepare is to get good information and follow the directions of public health professionals and your personal care team. CDC: https://www.cdc.gov/coronavirus/2019-ncov/index.html WHO: https://www.who.int/emergencies/diseases/novel-coronavirus-2019/events-as-they-happen National Science Foundation:Continue reading “COVID-19 Resources”

Tomorrow (February 29th) is Rare Disease Day. As someone who lives with multiple rare diseases, this day has a lot of importance to me. Not only do we need more awareness, we need more research, more studies, and ultimately more treatments (or ideally cures). In the US, drugs to treat a lot of these conditionsContinue reading “Rare Disease Day”

Thought I’d post a little life update for y’all: -I’m starting an online paralegal certificate program. Advocacy and fighting for disability rights has always been important to me and a passion, so my goal is to work for a firm that specializes in that. If I’m not well enough to work right away, I hopeContinue reading “Life Update”